Reading & Resources

It is natural that you're spending a lot of time on the internet researching your condition. You should. You should arm yourself with information and evidence to help you co-create your treatment. This is how I became a medical researcher, fervently reading NCBI papers, Merck Manuals, Mayo Clinic and Cleveland Clinic resources. This is all good. What is not as good are the online forums where there is a disproportionate amount of desperation. Patients who have been cured are less likely to participate in these forums and so while you get a lot of empathy from fellow sufferers, it can seem that there's no cure and no hope. So if you do happen to spend a lot of time on ICN or HealthUnlocked or Inspire, be careful. You will be better off partnering with yourself and doing your own research. Here you will find a selection of articles that will help you build your case with the medical profession.

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Professor Malone-Lee and the LUTS Clinic

'In pain all the time'
The rise of super-cystitis

UTI testing

Why Your UTI Test May Be Negative Even When You Have Symptoms - with information on latest testing techniques

Naturopaths / 'Functional' medicine

Deborah Grant - give her a chance, although it will cost a fortune
Stefan Chmelik - fixing anxiety before the pills can get to work 

Physiotherapy

Helen Keeble - pelvic health guru, especially myofascial release
IDD Therapy - a surprising way to help nerve pain

Catherine Simone

Along the Healing Path